Dublin City University
PPI Ignite network
Dublin City University
The PPI Ignite Network at DCU is led by Professor Veronica Lambert with Programme Manager Dr Lucy Whiston and a Community of Practice including our DCU local partners and representation from Schools and Departments from across DCU. This work aligns with DCU’s ‘people first’ values, as well as our commitment to meaningful collaboration with our communities and strong belief that the public and patients must be active partners in health research that transforms lives and societies. We co-lead work package 1 with Health Research Charities Ireland and the PPI Ignite Network at Galway focusing on PPI capacity building training and resources across communities
PPI Ignite network
All Ireland Institute of Hospice and Palliative Care
AIIHPC advances education, research and practice to improve the palliative care experience of people with life limiting conditions and their families. Since AIIHPC’s establishment in 2010, involving service users, carers and communities has been a core work programme of the Institute. Voices4Care was established in 2013 as AIIHPC’s service user, carer and interested citizen panel.
Barretstown’s mission is to rebuild the lives of children affected by serious illness, through our life-changing therapeutic programmes. Barretstown is committed to conducting and supporting PPI research and evaluation to bring forward the voices and needs of children and families with long term illness.
Children in Hospital Ireland
Children in Hospital Ireland (CIH) advocates for the rights and welfare of children in hospital and their families. Through PPI, we hope to involve children and their parents in the process of finding meaningful solutions to the challenges they face
Epilepsy Ireland is the national organisation supporting and representing people with epilepsy and their families. Supporting high quality Irish epilepsy research is pivotal to our mission. By actively involving those with a lived experience of epilepsy, we believe that the Irish research will be more relevant, better designed, impactful and more effectively disseminated, ultimately helping to create our vision of a society where no person’s life is limited by epilepsy.
Health Research Charities Ireland (HRCI)
Health Research Charities Ireland (HRCI) is the national umbrella organisation of charities active in health, medical and social care research, together representing over 1 million people in Ireland. Through support and advocacy, we represent their joint interests, to achieve our vision of improved lives through a united community of health research charities. We and our members have a strong focus on progressing PPI in Ireland.
International Network towards Alternatives and Recovery (INTAR)
The INTAR Network draws PPI research expertise in relation to mental health, from a global pool of people (experts by experience & family members) that have been involved in health and social care research in partnership with academics and clinical professionals for several decades.
Irish Advocacy Network
The Irish Advocacy Network is an Ireland wide peer advocacy organisation established to empower people with mental health problems by nurturing their ability to self-advocate. PPI encourages the voice of our community to be heard, that their experiences are facilitated, expressed and honoured to influence all things that affect their lives.
NetwellCASALA, Living Lab at Dundalk Institute of Technology
NetwellCASALA, based at Dundalk Institute of Technology, designs, develops and tests connected health and wellbeing technologies with and for older people in real-world settings. NetwellCASALA’s approach, grounded in multi-stakeholder collaborative, co-design, always places the older person at the centre.
Spina Bifida Hydrocephalus Ireland
We aim to foster an environment in which every person affected by spina bifida and hydrocephalus can lead a fulfilled life. With thousands of members nationwide consisting of those with spina bifida and/or hydrocephalus, their parents, siblings, family, friends and carers, Spina Bifida Hydrocephalus Ireland brings a wealth of knowledge and experience to ensure the perspectives of charities and families are at the table in supporting meaningful public and patient involvement throughout all stages of research, and all proposed PPI capacity building activities.