Co-design and co-adaptation of a trustworthy online resource for healthcare professionals and people with chronic hip and knee pain in Ireland
Introduction
Research Area:
Arthritis/ Hip/ Knee/ online resources/ Pain
What is the research about?
Long-term, painful conditions of the hip and knee joint are common in Ireland. Yet, many patients sit on waiting lists for months or years, even when specialist opinions are not needed. In the meantime, pain gets worse, affecting ability to live, work and be fully active.
Expert knowledge on how to manage these conditions and how to take control of pain and other symptoms can be life-changing for these individuals and is part of recommended care. Although internet searches mean we now have pages of health information at our fingertips, we are also living in an era of misinformation and “fake news”, making it difficult to find quality information.
The aim of this project is to create a free trustworthy web site for people with hip and knee pain in Ireland, with information that is backed by research, and designed with patients and healthcare professionals (HCPs) to make sure the information meets needs and is understandable.
What will I be asked to do?
The research team will work with people lived experience of long-term, painful conditions of the hip and/or knee joints and with HCPs to design a web site, co-adapting an existing Australian resource called the “TREK My Knee education and self-management toolkit” for people in Ireland and advertised by HCPs, patient groups, newspapers and social media.
Opportunity for:
Involvement Opportunity Details
Time
Time commitment:
2 - 3 workshops, each 2.5 hours
Contact between meetings:
Minimal contact between meetings, we may ask you to review the current online resource to help produce the best reliable information source for people in Ireland.
Length of involvement:
3 months
Start date for involvement:
22/06/2023
Logistics
Where?
If online, explain how:
Not applicable
If in person, explain where:
Raheen Woods Hotel, Athenry, Co. Galway, H65 E443 (Chosen for ease of access for people travelling from locations across Connacht and Western region)
Other ways of communicating:
Phone/ Email
Funding available for:
If no funding available, explain why:
Not applicable
Other Information
Stage of the research study/ programme:
Research started
Is this opportunity for PPI in a PhD:
Yes
Closing date to contact researchers:
20/06/2023
Research Team
Contact person:
John Hayes
University/organisation:
University of Limerick
Contact email:
john.hayes@ul.ie
Researcher background:
John Hayes (RA) - Physiotherapy Health Research, who is working with Dr. Clodagh Toomey (Co PI), Dr. Helen O’Leary (Co PI),
Research funder:
Health Research Board Knowledge Translation Award (KTA-2022-023)
Photo:
Interested in this PPI Opportunity?
Please complete this form and click SUBMIT