Investigating clinical trial team members’ views on retention strategies and their communication in clinical trials

Introduction

Research Area:

Trial Methodology

What is the research about?

In clinical trials, it is important that people recruited into the trial stay in the trial until it is finished. This helps makes sure the results of the trial are as accurate as possible. To help encourage people to stay in the trial, activities are carried out by the clinical trial team, these are called ‘retention strategies’. These strategies include for example, sending people reminders when they miss a clinic visits, providing monetary incentives, and covering the cost of transport to and parking at the clinic.

 

What this research aims to achieve

The purpose of this project is to ask clinical trial team members about their views and opinions of retention strategies and the communication of retention strategies in clinical trials. We want to understand:

  • the reasons behind the choice of retention strategies used in trials
  • the factors that influence the communication or lack of communication about retention strategies in clinical trials
  • if patients and members of the public are involved in the choice and the communication of retention strategies in clinical trials

To answer these questions, we will interview members of clinical trial teams. We want your help to develop the questions for these interviews and to give us feedback and input into the research.

Our PPI plans

We (researchers and PPI contributors) will meet online and these meetings will be informal conversations to gain your input and feedback on the following aspects of our research:

  • The best way to conduct our interviews
  • The interview questions we will ask trial team members
  • What should be highlighted from the interview findings as important results
  • The best way to present and share the study results

Opportunity for:

Member of the public

Involvement Opportunity Details

Time

Time commitment:

Up to 3 x 1 hour meetings over 4-6 weeks at the start of the project, and again over 4-6 weeks at the end of the project

Contact between meetings:

We may send you documents to read to prepare for the meetings. (You can also choose to receive monthly progress updates from us.)

Length of involvement:

12 months approx

Start date for involvement:

01/07/2023

Logistics  

Where?

Online

If online, explain how:

Using Microsoft Teams. We will provide training on how to use Microsoft Teams if required. .

If in person, explain where:

Not applicable

Other ways of communicating:

PPI members can be contacted via Microsoft Teams Chat if required

Funding available for:

PPI contributor’s time

If no funding available, explain why:

Not applicable

Other Information

Stage of the research study/ programme:

Early planning

Is this opportunity for PPI in a PhD:

Yes

Closing date to contact researchers:

31/07/2023

Research Team

Contact person:

Ellen Murphy

University/organisation:

University College Cork

Contact email:

ellen.murphy@ucc.ie

Researcher background:

Trial Methodology

Research funder:

Health Research Board Trial Methodology Research Network/ University College Cork

Photo:

Interested in this PPI Opportunity?

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