Would you like to get involved in research and the co-creation of resources impacting children and young people with Type 1 Diabetes?
Introduction
Research Area:
Diabetes/ Self-management/ Transition/ Type 1 Diabetes
What is the research about?
We would like to hear from you if you are:
- The parent of a child or young person aged 10-24 years old with Type 1 Diabetes (T1D) OR
- Aged 10-24, living with Type 1 Diabetes (T1D)
This research aims to establish, train, and facilitate adolescent and family PPI panels to work with University College Cork (UCC) researchers and healthcare professionals at Cork University Hospital paediatric diabetes clinic (CUHPDC).
What we want to achieve:
1. We will establish, develop, and train three advisory panels of children (10-17), young people (18-24) who live with T1D and parents/ guardians so they can work effectively with researchers and health care professionals;
2. We will organize three engaging training workshops;
3. We will co-create a “PPI with adolescents’ toolkit” for health care and social care professionals;
4. We will co-develop important research study priorities
Why do we need you?
We want to learn from your lived experiences and what is important to you
Opportunity for:
Involvement Opportunity Details
Time
Time commitment:
3 workshops, each 90 minutes long. No preparation required. These will be held in-person in University College Cork, an online option can be facilitated. We hope to run an additional workshop as well.
Contact between meetings:
We will mainly contact you through email. If you prefer, we can call or text message you.
Length of involvement:
Training workshops will run from November/December 2023 to March 2024. We will run an additional workshop in co-creating educational resources with the Cork University Hospital Paediatric Clinical Team. Involvement in this additional workshop is up to each contributor.
Start date for involvement:
28/11/2023
Logistics
Where?
If online, explain how:
We prefer in-person sessions but can accommodate online participation through Microsoft Teams if necessary.
If in person, explain where:
Choice of venue is flexible and will adapt to accommodate the accessibility needs of our PPI contributors. In-person sessions will be held in wheelchair accessible meeting rooms in University College Cork. Parking available.
Other ways of communicating:
Letters / Ms Teams / Phone call / SMS / Text message / video call / Whatsapp / Zoom
Funding available for:
If no funding available, explain why:
Not applicable
Other Information
Stage of the research study/ programme:
Funded but not yet started
Is this opportunity for PPI in a PhD:
Yes
Closing date to contact researchers:
26/11/2023
Research Team
Contact person:
Paula Leocadio
University/organisation:
Cork University Hospital/ University College Cork
Contact email:
pleocadio@ucc.ie
Researcher background:
Paula Leocadio (PhD based in University College Cork), Dr. Carol Kelleher (UCC co-lead for the PPI Ignite Network and Dept. of Management and Marketing at UCC), Dr. Eluska Fernandez (School of Applied Social Studies at UCC ), Dr. Colin Hawkes (Paediatric Endocrinologist at Cork University Hospital, Department of Pediatrics and Child Health at UCC)
Research funder:
Cork University Business School - Dept. of Management & Marketing/ Cork University Charity Foundation/ Irish Research Council New Foundations Programme/ University College Cork - the School of Applied Social Studies
Photo:
Interested in this PPI Opportunity?
Please complete this form and click SUBMIT