Good Practices vs. Real Life: What Actually Works

Frameworks, charters and good-practice guidance for patient involvement are now well established, but what happens when they meet the realities of everyday life? In this second webinar of the EUPATI Academia–NGO cluster series, speakers from European Organisation for Research and Treatment of Cancer (EORTC), University College Dublin (UCD) and Sant Joan de Déu (SJD) Hospital Barcelona share candid examples from their own work. They cover how attitudes towards involvement have evolved, what has and has not worked, and what it means to involve children, young people and their families. The session acknowledges the ‘messiness’ of involvement in academic and non-profit settings, from limited resources and unpredictable research timelines to unresolved questions of shared ownership, and shows why no framework can simply be copied from one organisation to another. Participants will come away with practical strategies for adapting good practices to their own context, anticipating challenges early, and keeping people involved at every stage of research rather than only at the start.

Date: 03 Nov

Time: 11am

Venue: Online

Registration Link: https://us02web.zoom.us/webinar/register/WN_NJT-YNWMSJauyHcKuQFUbA