Public and patient involvement in health and social care research across the island of Ireland

Partners

Eleven universities and ten all-island organisations, coordinated by the Central Office at RCSI. Every partner has a named team you can contact directly about involving the public in research.

THE NETWORK HUB

One Central Office, twenty-one partners

A hub diagram showing the Central Office and all twenty-one partners. The same partners are listed as cards below, in alphabetical order.

PARTNER UNIVERSITIES

Eleven universities delivering PPI support

Each university has an academic co-lead, a PPI co-lead who brings lived experience, and a programme manager. Contact them directly for support with a study, training, or to get involved.

Academic co-lead Prof. Veronica Lambert, PPI co-lead Arthur Templeman-Lilley, programme manager Dr Damian Haslett. Particular focus on children and young people.

Academic co-leads Dr Nicola Mountford and Dr Mark Robinson, working across healthcare management and the immunology of chronic disease.

A five-person team led by Professor Joe Duffy and Professor Claire Kerr, with PPI co-lead Joanne Sansome. Home of the QUB PPI Hub.

Host of the Central Office. Academic co-leads Dr Maria Pertl and Prof. Jennifer Ryan, PPI co-lead Ciarán McCarthy, programme manager Niamh Dillon.

Academic co-leads Dr Laurence Fitzhenry and Dr Martina Gooney, embedding PPI in national and European research programmes.

PPI co-lead Declan Meenagh sits on the Network Steering Group. Team bios and contact details to be supplied.

PPI co-lead Patrick Fitzgerald sits on the Network Steering Group. Team bios and contact details to be supplied.

Dr Fiona Riordan represents UCC research support on the Network Steering Group. Team bios and contact details to be supplied.

Academic co-lead Prof. Thilo Kroll, PPI co-lead Katayoun Bahramian, programme manager Dr Emma Dorris. Focus on inclusive research designs.

Academic co-leads Dr Ruth McMenamin and Dr Natalie Walsh, PPI co-lead Derek C Stewart, programme manager Martha Killilea.

Co-Leads: Molly Manning (Academic), Paul O’Mahony (Research), Lora Ruth Wogu & Martin Quinn (PPI); PM: Su Huschke

ALL-ISLAND PARTNER ORGANISATIONS

Ten organisations connecting the Network outwards

Charities, funders, regulators and national research programmes that bring PPI into services, policy and practice across the island.

HRCI brings together over 40 national health research charities representing people affected by cancer, rare disease, mental health conditions, dementia, disability and a wide range of chronic illnesses.

HSE Research & Development provides governance, support and strategic direction for health and social care research across the public health service.

The Irish Platform for Patient Organisations, Science and Industry (IPPOSI) is a unique multi-stakeholder partnership that brings together patients.

Tusla Child and Family Agency is an established Network partner and a leading voice for child, youth and family research (CYFR) and policy.

The SPHeRE Programme is Ireland’s national research PhD training programme for population health, policy and health services research (PHPHSR) and is funded by the Health Research Board in Ireland.

The institute aims to provide evidence-based research to inform policies that support a healthy economy and promote social progress. The ESRI focuses on twelve key areas: Behavioural Science; Climate;

Research Ireland supports excellent research and innovation across all disciplines and career stages, from discovery-led research that advances knowledge and understanding to applied research with a focus on delivering economic and societal impact.

The Health Information and Quality Authority (HIQA) is an independent statutory body established to promote safety and quality in the provision of health and social care services for the benefit of the health and welfare of the public.

The Royal Irish Academy is Ireland’s leading body of experts supporting and promoting the sciences and humanities. As an all-island independent forum of peer-elected experts the RIA recognises world-class researchers and champions Irish academic research.

ECRIN (European Clinical Research Infrastructure Network) is a European Research Infrastructure facilitating multinational clinical research through the provision of advice and services for the management of investigator or SME led clinical studies in Europe.

GOVERNANCE

Steering Group

The Steering Group provides leadership for PPI across the island, develops the strategic direction of the Network and oversees monitoring and governance of Network activities. Its eleven members are drawn from PPI, academic and research support roles across the partner universities.

11

Steering Group members

International Advisory Board

To be confirmed

Reference Forum

To be confirmed

Workplan 2026–2031

Governance and Workplan →

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