Developing Consensus on an Irish Renal Registry for Research: A Multi-Stakeholder Event

As part of the National PPI Festival, this conference brings together the HSE National Renal Office, the Irish
Nephrology Society, Irish Universities, the Irish Kidney Association, kidney patients, eHealth Ireland and the HSE National Health Intelligence Unit to develop a shared vision of the key considerations in the development of the Irish Renal Registry to enable research. This will be captured in a report to the HSE to support ongoing work in this area and in a publication in HRB
Open.

Chronic kidney disease (CKD) is common in Ireland - with a recent study showing 1 in 7 people over 50 years old have the condition - and is associated with significant social and economic burden. Despite this, Ireland has no patient registry for kidney disease. A registry is simply a computer database that collects clinical information and health outcomes for a group of patients to help improve the quality of care.

Travel costs are available for members of the public and patients who would like to attend this event, please contact David Keane for more details at keanedd@universityofgalway.ie