Public and patient involvement in health and social care research across the island of Ireland

Central Office at the Rare Disease Research Conference 2026

It was a pleasure for the All-Island PPI Ignite Network Central Office to attend the Rare Disease Research Conference 2026 at University College Dublin, organised by the Rare Disease Clinical Trial Network, funded by the Health Research Board (HRB) and supported by our All-Island Partner, HRCI – Health Research Charities Ireland.

We were delighted to have a stand at the conference, providing an opportunity to showcase the work of the Network, share our ongoing initiatives and connect with a wonderful mix of people, from familiar faces in the PPI community to those exploring patient and public involvement for the first time.

It was particularly valuable to hear Dr Cassandra Dinius share her experiences and perspectives on PPI leadership, and to catch up with Dr Avril Kennan from HRCI.

A big thank you to the organisers for bringing together such a diverse group of researchers, patient advocates and organisations. We look forward to more opportunities to connect, collaborate and strengthen PPI in health and social care research across the island of Ireland!

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