Global Perspectives on Person Public Involvement and Engagement in Dementia Research and Project Development

This Global Brain Health Institute (GBHI) webinar will explore global perspectives of Public and Patient Involvement and Engagement (PPIE) through the lens and work of Global Atlantic Fellows for Equity in Brain Health at GBHI. Hearing from three fellows, perspectives from Africa, Europe, and South America will be explored in collaboration and discussion with current PPIE participants.

Traditionally, health research and service development has been governed by professional experts who have largely bypassed patient and public feedback and experience. In these scenarios, top-down approaches of decision making, without representation of people with lived experience, have prevailed. However, more recently, this model has begun to change. Researchers, clinicians, and artists are collaborating with individuals with lived experience, not just as consumers of research, or recipients of care, but as important stakeholders in the entire research or health services development cycle. PPIE is actively advancing developments in dementia research and brain health.