Become a member of the Health Research Consent Declaration Committee (HRCDC)

Introduction

Research Area:

The HRCDC reviews applications for health and social care research where it is not possible to obtain explicit consent of the participant.

What is the research about?

In health research,  explicit consent is required for processing participants personal data. However,  sometimes it is not possible to obtain consent (e.g  emergency care or large scale data analysis).
The Health Research Consent Declaration Committee (HRCDC) reviews research applications in such cases to decide whether the public interest in conducting research significantly outweighs the requirement to obtain explicit consent from research participants.
The HRCDC is inviting expressions of interest to become a member of their committee, including from members of the public and patients. The Committee’s PPI representative members bring complementary perspectives to professionals and academics as members of the public, as carers, and as users of health and social care services in Ireland. In order to make a consent declaration, members of the HRCDC assess research applications and determine if the public interest in carrying out the health research significantly outweighs the requirement for explicit consent from participants. The HRCDC will provide full training to any PPI members on the requirements for membership of the HRCDC.
The HRCDC also considers the data safeguards in place for each study in order to ensure that personal data are handled appropriately and according to regulatory requirements.
Being a member of the HRCDC is an exciting opportunity to support the Irish Health and Social Care Research communities, especially in the cases where is it not possible or feasible to get explicit consent of participants.
To find out more and to apply, please visit our latest news section https://hrcdc.ie/new-expressions-of-interest-to-join-the-hrcdc/  or contact secretariat@hrcdc.ie
Expressions of Interest should be submitted by Friday 29th November 2024.

Opportunity for:

Person living with condition / Member of the public / Parent or carer / Social care experienced person / Service user

Involvement Opportunity Details

Time

Time commitment:

11 meetings per year, three hours for each meeting

Contact between meetings:

Review of applications before each meeting.

Length of involvement:

three years

Start date for involvement:

01/03/2025

Logistics  

Where?

Online / In Person

If online, explain how:

The meetings will be held on Zoom. There are two in person meetings per year, held in Dublin. Documents in relation to the applications for decision will be available via a secure on line platform.

If in person, explain where:

Health Research Board offices, Dublin 2

Other ways of communicating:

NA

Funding available for:

PPI contributor’s time / Travel and other expenses

If no funding available, explain why:

Not applicable

Other Information

Stage of the research study/ programme:

More than one research study

Is this opportunity for PPI in a PhD:

No

Closing date to contact researchers:

29/11/2024

Research Team

Contact person:

Brid Burke (bburke@hrcdc.ie)

University/organisation:

Health Research Board (HRB)

Contact email:

bburke@hrcdc.ie

Researcher background:

Programme Manager

Research funder:

N/A

Photo:

Interested in this PPI Opportunity?

Please complete this form and click SUBMIT

Our PPI Opportunities noticeboard aims to connect members of the public and patients with researchers who are looking for PPI contributor partners. The PPI Ignite Network do not receive a notification that you are contacting this research team.(Required)
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