Voices That Matter – Join Us in our Mission to Stop Pressure Sores
Introduction
Research Area:
bedsores/ pressure injuries/ pressure sores/ pressure ulcers
What is the research about?
We want to learn more about pressure sores (also called bedsores) in the future. Pressure sores happen when someone stays in one position for too long, which damages their skin.
Before we start, we want to talk to people who know about and or have experienced pressure sores. This will help us decide what to study together. We want patients and caregivers to help us understand how to prevent pressure sores, based on their needs and experiences.
We want people who know about pressure sores to have a say in making important decisions about avoiding them.
Who is the Opportunity for?
We are looking for eight to ten people with diverse backgrounds, perspectives and experiences who have either:
• had a pressure sore
• are trying to avoid having a pressure sore
• assisting someone with a pressure sore
We want to highlight the importance of including people with diverse skin tones in our partnership in order to better understand how to avoid pressure sores, and to address healthcare disparities.
PPI plans
We would like these people to become our advisory partners and decide with us:
• What needs to Change to better avoid pressure sores
• Where we should Start with the changes we want to make
• What Solutions can help make things better
• How we can Improve the lives of those affected by pressure sores
For our meetings, we will work with the advisory partners to create a “terms of reference” document. This document will explain how we will have our meetings, how we will reimburse them for their time, and how we will handle any concerns. We are also making a toolkit to help contributors get support if they feel upset.
Opportunity for:
Involvement Opportunity Details
Time
Time commitment:
We would like to arrange eight meetings; each meeting will be 60 minutes long. We can facilitate both a face to face meeting and an online meeting. The choice of face-to face or online will depend on your preference.
Contact between meetings:
The contact activity between meetings will depend on your preference. However, we would like to provide at least one contact via email, phone call or postal mail to update you on what was discussed at the meeting and what the agreed plan is before the next meeting.
Length of involvement:
This involvement will last two years, however if you would like to be involved for a shorter or longer time we would be happy to speak about that with you at any time.
Start date for involvement:
21/02/2025
Logistics
Where?
If online, explain how:
Zoom or Microsoft teams, depending on your preference.
If in person, explain where:
The Royal College of Surgeons in Ireland, University of Medicine and Health Sciences has a number of accessible rooms that can accommodate diverse needs and ensure a comfortable, inclusive environment for a face to face meeting. However, should you prefer an alternative location, we are more than happy to arrange that as well. We will discuss your preferences and provide further information about the accessible facilities at the university.
Other ways of communicating:
Email / Phone Calls / Postal Mail / Social media platforms / Website updates
Funding available for:
If no funding available, explain why:
Not applicable
Other Information
Stage of the research study/ programme:
Early planning
Is this opportunity for PPI in a PhD:
No
Closing date to contact researchers:
28/01/2025
Research Team
Contact person:
Hannah Wilson
University/organisation:
at the Royal College of Surgeons in Ireland/ Dublin/ Ireland. The Wiser Wound Care team from Griffith University in Australia is also working with us because they have experience in involving patients and the public in wound care research./ This project is led by the Skin Wounds and Trauma (SWaT) Research Centre/ University of Medicine and Health Sciences
Contact email:
wilsonhannah@rcsi.com
Researcher background:
Hannah, who is leading this project, has a nursing background and is passionate about involving patients and caregivers in research. Declan Naughton, is an advisory partner that has been involved in this project since August 2024. Hannah and the wider project team work at the SWaT Research Centre, which is a nurse-led research centre within the School of Nursing and Midwifery. This centre focuses on improving outcomes for patients with wounds. The Wiser Wound Care team is also a nurse-led research group in Australia that have experience in involving patients and the public in wound care research.
Research funder:
European Pressure Ulcer Advisory Panel Research Committee Starting Grant
Photo:
Interested in this PPI Opportunity?
Please complete this form and click SUBMIT