National PPI Festival
PPI Ignite network
National PPI Festival
Public & patient involvement: connecting communities
The first-ever National PPI Festival was rolled out over two weeks in October 2022, with over 40 events taking place across the country involving almost 2000 people, showcasing and celebrating the incredible progress in public and patient involvement (PPI) in Irish research.
This first of its kind National PPI Festival featured a variety of events with over 30 groups involved in organising events, including the PPI Ignite Network programme offices, other groups across the Universities, PPI contributors, national and local Network partners, and charities not formally part of the Network, all demonstrating the increased focus on PPI nationally.
With a mix of in-person, hybrid and online events, celebrating and raising awareness of PPI, building PPI capacity or exploring PPI in a specific health conditions, the variety was endless.
Over 20 resources were generated, we share some of these below.
National PPI Festival
#PPIFestival22 Highlights and Resources
PPI in Lab-Based Research
Bec Hanley, an independent UK PPI consultant, Dr Laura Jacobs UK Parkinsons and Dr Emma Dorris, UCD PPI Ignite Network programme manager contributed to this webinar organised by the national partner QUB.
Watch the presentations here, followed by a stimulating discussion.
PPI Contributors Gathering
“The enthusiasm and energy which this in-person event was imbued with is invaluable”
Designed by PPI contributors, for PPI contributors, this was a wonderful opportunities for PPI people to meet other PPI people. Attendees identified questions for a PPI Frequently Asked Questions (FAQ). We will share the PPI FAQ when completed.
The finale from the Village Community Choir captured the day perfectly.
PPI in Arthritis Podcast
World Arthritis Day was marked with the launch of a podcast conversation between RCSI researchers and people living with osteoarthritis, highlighting the important role of PPI to improve research into primary care of people with osteoarthritis. A super conversation combining lived experience with research and clinical knowledge – access the podcast here.
PPI values & Principles Launch
The PPI Ignite Network Values and Principles Framework was launched during the Festiavl, defining the values and principles underpinning the work of the PPI Ignite Network and proposed as the values and principles for PPI in research across Ireland.
The Network and all PPI practitioners are now tasked with embedding these values in our PPI practices.
Youth Mental Health Video co-design
The experience of co-designing and co-facilitating a MYSTORY study video, sharing young people’s asks for school mental health and suicide prevention was recounted during a Festival webinar from UL.
A Tale of Four SWATs
The COB-MS Feasibility Trial tested a cognitive rehabilitation approach for people living with MS. A person living with MS was employed as an Embedded Researcher on the team.
Is there a Role for Publishers in fostering PPI?
What role, if any, do publishers have in fostering public and patient involvement in research? You will be able to listen back soon to a fascinating webinar, moderated by Prof Grace Mulcahy (UCD), in discussion with representatives from three leading academic journals.
Irish Cancer Society PPI Showcase
Irish Cancer Society patient advocates, Siobhan Freeney, Clodagh Flynn and Yvonne O’Meara shared their thoughts on the impact that PPI can have on cancer research in Ireland during a Festival webinar.