PPI Ignite network
RCSI University of Medicine and Health Sciences
RCSI University of Medicine and Health Sciences was delighted to join the National PPI Ignite Network as one of the 7 lead university sites in 2021. RCSI’s singular focus as a university is on healthcare – healthcare education, postgraduate training, research and service for the benefit of human health – characterised by values of Respect, Collaboration, Scholarship and Innovation.
The PPI Ignite Lead at RCSI is Dr Michelle Flood, School of Pharmacy and Biomolecular Sciences. The RCSI PPI Ignite Office is strategically guided by a multidisciplinary RCSI PPI in Research committee inclusive of patient contributors and academics experienced in PPI.
Our PPI vision is to embed dynamic, meaningful and high-impact patient and public involvement thoughout all RCSI led research. The Office of Research and Innovation (ORI) is highly supportive of PPI collaborations to conduct innovative, high-quality research with significant ‘real world’ impact for patients in terms of breakthrough medical technologies, effective healthcare treatments and patient data analysis that directly informs public health services and policy. The strong institutional commitment to PPI at RCSI is clearly evident here.
As a patient-centric organisation, RCSI fully appreciates that people with lived experience of healthcare conditions, family members and public stakeholders have unique perspectives that can improve the quality of the research, right from research design through to dissemination of results and translation into healthcare practise.
RCSI academics, clinicians and students seek to accelerate research partnerships firmly focused on identifying and meeting patient and public priorities for improved healthcare outcomes, and to contribute to this national PPI Ignite Network partnership between academia, patient organisations and the public. In tandem, we will champion patient and public partnership as central to healthcare development for our current students – and in this way establish these PPI principles for our future healthcare leaders.
PPI Ignite network
Irish Heart Foundation
Irish Heart Foundation is the national heart and stroke charity which supports and advocates for people who have been affected by heart and stroke. Every year in Ireland, almost 9,000 people die from heart disease and stroke, and hundreds of thousands of families are living with the effects of heart disease and stroke.
Epilepsy Ireland works to meet the needs of people with epilepsy in Ireland and their carers and families through a range of individual and group support, training and educational programmes. A key strategic aim of Epilepsy Ireland is to support research into the causes of, cures for and management of epilepsy and into the social and psychological effects of the condition. Epilepsy affects more than 40,000 people in Ireland today.
Alpha-1 Foundation Ireland
Alpha-1 Foundation is a charity dedicated to improving diagnosis, research and treatment of Alpha-I Antitrypsin Deficiency, a genetic disorder severely affecting more than 15,000 people in Ireland. There are 250,000 carriers of Alpha-1 which is a genetic risk factor for chronic obstructive pulmonary disease (COPD Based in the RCSI Education and Research Center at Beaumont Hospital, Alpha 1 offered a clinic, patient registry, national detection programme, and research to improve patient outcomes.
HSE Digital Transformation
HSE Digital Transformation aims to develop the digital capability of the HSE and associated ecosystem to drive breakthrough improvement in health service efficiency, effectiveness and experience. It seeks to drive the rapid adoption of disruptive Digital Health technologies to enable better citizen and patient outcomes. These include telehealth resources, videoconference tools for Clinicians, remote monitoring tools, advanced digital diagnostics and digital innovation partnerships
RCSI Clinical Research Centre
The RCSI Clinical Research Centre (RCSI-CRC) leads research programmes in both Beaumont Hospital and Rotunda Hospital, which serve as hubs for seven hospitals in RCSI Hospitals Group. Core clinical research areas include Respiratory and critical care medicine; Kidney disease; Clinical neurosciences; Gastroenterology; Haematology and oncology; Maternal and fetal medicine. RCSI-CRC, RCSI Hospitals and its investigators fulfil key leadership roles in, and are key sites in all HRB Clinical Trial Networks. In addition, RCSI-CRC plays a lead national role in clinical research nurse education.
FutureNeuro is a specialist Research Centre for Chronic and Rare Neurological Diseases, funded by Science Foundation Ireland. Hosted by RCSI University, over 80 multidisciplinary researchers collaborate across a range of universities to explore brain disease through themes of diagnostics, therapeutics and eHealth. Research has ‘real world application’ as it takes place in partnership with the National Clinical Network for Neurology. See www.futureneurocentre.ie