What is the research about?
We are conducting this study to document patient experience with medications for multiple sclerosis. Specifically, adherence (staying on a medication at the dose prescribed) in multiple sclerosis varies greatly with studies reporting adherence ranging from 37% to 88%. We want to study why some medications are adhered to and others are not so we can make recommendations to clinicians that in the long run ensure patient treatment adherence, safety, and satisfaction. To do this, we are asking people with multiple sclerosis to help us design, roll-out, report and disseminate this cross-sectional survey.
Involvement Opportunity Details
There is flexibility with the time commitments. We currently propose 5 group meetings in total for the duration of the project lasting 1 hour each.
Contact between meetings:
We will mainly contact you through email in-between group meetings but if you prefer phone calls or text messages this can be facilitated.
Length of involvement:
Anticipated project duration 7 months. If the PPI group would like to continue to assist with future research projects, this can be discussed towards the end of this project.
Start date for involvement:
If online, explain how:
Meetings will be held online via Microsoft Teams. These meetings will be scheduled in advance and will fit around your schedule. We will provide training on Microsoft Teams if needed.
If in person, explain where:
Other ways of communicating:
We can communicate through Text messages/Phone calls/Whatsapp
Funding available for:
If no funding available, explain why:
This research is part of Alanna Denny’s PhD of which there is no funding for PPI. Therefore, it is entirely voluntary undertaking. However, with your permission, you will be acknowledged in research papers, conferences and presentations and provided with a digital certificate of contribution. You will not incur any travel costs as the meetings will be conducted online.
Stage of the research study/ programme:
Is this opportunity for PPI in a PhD:
Closing date to contact researchers:
University College Cork
The research team is comprised of two lecturers from the School of Public Health at University College Cork and a PhD student.
No funding/ Schools of Public Health and Pharmacy/ University College Cork
Interested in this PPI Opportunity?
Please complete this form and click SUBMIT