Have Your Say: Catching Ovarian Cancer Early

Introduction

Research Area:

Ovarian cancer

What is the research about?

Our research group looks at finding ways to detect ovarian cancer early, using molecules called “non-coding RNAs”. Non-coding RNAs are molecules that come from our DNA and do not make (or ‘code for’) proteins. These non-coding RNAs play important roles in many types of cancer, including ovarian cancer

We want to investigate whether we can use non-coding RNAs as tools for early ovarian cancer detection. To make sure that we are working towards a patient focused test, we would like to work with a team of PPI partners with lived experience of ovarian cancer, or carers of someone who has been affected by this disease. We want to learn what they would like to see in a diagnostic test, for example, how a test would be taken (blood-based or otherwise), what should it tell us etc.

Glossary
RNA: a molecule that is copied from the information in our DNA
Coding RNA: an RNA that converts DNA information into proteins
Protein: building blocks that make up our cells and carry out most cell functions
Non-coding RNA: RNAs that do not convert DNA information into proteins

Opportunity for:

Person living with condition / Parent or carer

Involvement Opportunity Details

Time

Time commitment:

2 workshops, each 1.5 hours long. These will be held in person in University College Cork, but if contributors cannot attend in person, we can organize an online option.

Contact between meetings:

We will initially have a one-to-one conversation with interested contributors to give some more information about the project, ask about accessibility needs, dietary requirements etc and what the workshops will involve. We will also send reading materials to each contributor before both workshops. We estimate that it should take less than one hour for contributors to go over these materials and prepare for each session.

Length of involvement:

We plan on running these two workshops in November/December 2023 and January/February 2024. We hope to run additional workshops in future and involvement in these is up to each contributor.

Start date for involvement:

01/11/2023

Logistics  

Where?

Online / In Person

If online, explain how:

If contributors wish to participate online, we will contact them for an initial one-to-one conversation to ask which platform would suit them most (i.e. zoom, teams, phone call etc).

If in person, explain where:

We plan to hold our meetings in one of the wheelchair accessible meeting rooms in the Western Gateway Building, UCC (parking is available here). This is flexible, however, as our choice of venue will adapt to accommodate the accessibility needs of our PPI partners.

Other ways of communicating:

Email / Telephone

Funding available for:

PPI contributor’s time / Travel and other expenses

If no funding available, explain why:

Not applicable

Other Information

Stage of the research study/ programme:

Early planning

Is this opportunity for PPI in a PhD:

Yes

Closing date to contact researchers:

01/11/2023

Research Team

Contact person:

Aideen McCabe

University/organisation:

University College Cork

Contact email:

aideenmccabe10@gmail.com

Researcher background:

PhD Researcher in Cancer Biology

Research funder:

Science Foundation Ireland

Photo:

Interested in this PPI Opportunity?

Please complete this form and click SUBMIT

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