Help us investigate preferences for community-based healthcare services for individuals living with neuro-physical disabilities.
Introduction
Research Area:
Health economics/ Community-based healthcare/ Disability management
What is the research about?
Current models of care for individuals with neuro-physical disabilities (for example spina bifida, cerebral palsy, multiple sclerosis etc.) are disconnected. Recently, the government established a series of action plans to promote the expansion of Ireland’s community healthcare network. Such an expansion aims to encourage individuals to take control of their locally, potentially reducing inequalities for marginalised populations, including those with disabilities.
In our research, we want to design a survey to investigate individual preferences for community-based healthcare to see what aspects of these services people value the most. These PPI activities will help us to decide what to include in the survey and how best to distribute it. We hope that the results from this research, amplified by the insights of our PPI contributors, will inform better public policy making regarding community-based healthcare for individuals with neuro-physical disabilities.
Who is the opportunity for?
We are looking to engage with between 4 – 8 PPI contributors to advise our survey design. This is open to individuals aged 18 or over, based in the Republic of Ireland. Experience engaging with a community-based healthcare organisation is preferable, but not necessary. Previous experience in PPI or research is not required. In particular we welcome:
• Any individual living with a neuro-physical disability
• Any family member of an individual living with a neuro-physical disability
• Experts in the provision of community-based care.
What will PPI Contributors do?
We will ask you to meet us for a two-hour online workshop in mid-March (date and time to be decided), focusing on survey design. After this workshop, you will be asked to take part in a one hour one-to-one online meeting in April (date and time to be decided) to review the survey design to identify any further changes. Finally, we hope to evaluate all PPI activities in a final two-hour online workshop in June (date and time to be decided).
Opportunity for:
Involvement Opportunity Details
Time
Time commitment:
Total time commitment of approximately 5 hours, consisting of two 2-hour online workshops, and 1 online one-to-one interview.
Contact between meetings:
Communication between meetings will be via email, in order to arrange meeting times and share meeting details (including meeting links, documents to be reviewed etc.)
Length of involvement:
Approx. 6 months
Start date for involvement:
17/03/2025
Logistics
Where?
If online, explain how:
We will arrange an online Zoom meeting. This will be a group meeting, with other PPI contributors and some of the researchers (up to 4 PPI contributors and 1-2 members of the research team).We will arrange to speak to you before this meeting by phone to make sure everything is clear and to answer any questions you may have about the process for the meeting.
If in person, explain where:
Not applicable
Other ways of communicating:
Email / Telephone call / video call
Funding available for:
If no funding available, explain why:
This project is part of a PhD in Health Economics. Unfortunately, financial reimbursement for contributing to this project will not be possible. However, all efforts will be made to acknowledge PPI contributions in a meaningful and appropriate way, for example, through acknowledgement in any academic and non-academic publications and reports, conference attendance and presentations (with the contributors permission).
Other Information
Stage of the research study/ programme:
Research started
Is this opportunity for PPI in a PhD:
Yes
Closing date to contact researchers:
12/03/2025
Research Team
Contact person:
Áine Jennifer Gorman
University/organisation:
University College Cork (Cork University Business School)
Contact email:
DCEsurvey@ucc.ie
Researcher background:
Áine has a background in commerce, and has completed a Masters in Business Economics. She is completing a PhD in Health Economics titles “Examining the Economic and Social Value of Community Health Organisations: An Empirical Case Study of The Crann Centre”.
Research funder:
Cork University Business School PhD Scholarship
Photo:
Interested in this PPI Opportunity?
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