Living or caregiving of someone with multiple sclerosis – impact of technology on peer support

Introduction

Research Area:

Peer support/ Multiple sclerosis

What is the research about?

This research aims to explore what role technology might play supporting the wellbeing (and quality of life) or people affected by multiple sclerosis. It is established that there is limited research exploring psychological impact and interventions in MS, more so for caregivers. It is against this background and a systematic literature review that highlights the potential for technology-mediated peer support, to have a positive impact, that this next research focuses on. We want to explore this in the Irish context, where limited research also exists.
PPI contributors can contribute to prioritising the next phase: focus, methodology selection and development of research tools. In the coming year, after this phase, they would also contribute to deciding on the next logical step given the results.

Opportunity for:

Person living with condition / Parent or carer

Involvement Opportunity Details

Time

Time commitment:

Maximum of 1 hour meetings at least 6 months apart over two years

Contact between meetings:

maximum of 30 mins spent responding to questions, sharing ideas, or reading documents towards the meetings

Length of involvement:

2 years

Start date for involvement:

30/11/2023

Logistics  

Where?

Online

If online, explain how:

Teams, Emails

If in person, explain where:

Not applicable

Other ways of communicating:

SMS / Text message

Funding available for:

PPI contributor’s time

If no funding available, explain why:

Not applicable

Other Information

Stage of the research study/ programme:

Research started

Is this opportunity for PPI in a PhD:

Yes

Closing date to contact researchers:

16/11/2023

Research Team

Contact person:

Joan Alaboson/ Dr Rebecca Maguire / Dr Laura Coffey

University/organisation:

Maynooth University

Contact email:

JOAN.ALABOSON.2023@mumail.ie

Researcher background:

PhD researcher/ Psychologists

Research funder:

SFI ADVANCE CRT

Photo:

Interested in this PPI Opportunity?

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