Podcasts of interest to the PPI Community
Description:
Have you ever produced or contributed to a podcast? If so, you will know that creating and publishing podcasts takes a lot of time, energy and money! Therefore, it is important to make it easy for everyone to find and listen to your podcasts. In the past year, a number of podcasts/podcast series of interest to the PPI community have been published from teams around Ireland – here we gather links to as many of these as we can find.
Have you published a podcast or podcast series of interest to the PPI Community? Do you want to broaden your audience? Send us a link to your podcast/podcast series and we will add it here.
UCD Ignite Involvement podcast series
Produced the PPI Ignite Network @ UCD team, the first series contains five episodes, conversations with:
- Prof Thilo Kroll, site lead for PPI Ignite Network @UCD, about the basics of PPI and tells us about his own journey into PPI.
- Dr Nikki Dunne, research manager with Family Carers Ireland, talking about carer involvement and the experience of building the PPI family carers network
- Dr Purity Mwendwa, a post-doctoral fellow in the School of Nursing, Midwifery and Health Systems at UCD, talks about her experience of PPI in sub-saharan Africa
- Maarten de Wit and Denis O’Sullivan are PPI contributors involved in the project exploring the early identification of psoriatic arthritis, and improving outcomes for psoriatic arthritis patients
- Prof Rachel Crowley, a consultant endocrinologist at St. Vincent’s University Hospital Dublin and UCD, talks about PPI in the clinical trial space for rare diseases
The UCD Ignite Involvement podcasts were facilitated by Dr Emma Dorris, the PPI Ignite Network @ UCD programme manager, Dr Nora Lieggi, the former programme manager and Dr Thilo Kroll.
A team of researchers at University College Dublin, in partnership with Family Carers Ireland, are undertaking a four year research project to examine how family carers can be best supported to balance work with care. The Carewell Conversations podcast series aims to raise awareness about the issues and challenges facing family carers who combine work and care.
Including the carer voice on PPI teams is of great importance for many different research areas. By helping researchers and other PPI contributors to understand some of the challenges facing family carers, this podcast series provides an important learning opportunity that can enhance the carer voice across PPI in research.
With 10 episodes published between April and October 2022, this rich resource is available here. Brian Doyle, a member of the CAREWELL team, is the producer of the podcast series.
PPI from the Clinical Investigator’s Perspective
Eibhlín Mulroe, Cancer Trials Ireland, talks PPI to Prof Sean Dinneen, PPI Ignite Network lead. Sean is a consultant endocrinologist at Saolta’s Galway University Hospital and University of Galway, and leads the D1Now study, where a team of young adults living with diabetes have worked for a number of years to shape and conduct a pilot RCT of a new model of care for young adults with diabetes.
“Recognising early on that we (healthcare professionals) were not going to crack this on our own is how I got involved in PPI and it has been one of the most rewarding things I have done.” Listen to this fascinating podcast here.
Podcasts from PPI Ignite Network at RCSI
Podcasts coordinated by the PPI Ignite Network at RCSI include conversations on:
- Understanding Sjogrens Syndrome, Dr Deirdre Collins, a patient advocate living with Sjogren’s Syndrome, and Dr. Joan Ni Gabhann-Dromgoole, RCSI Lecturer in Ophthalmology and Immunology speak about their experience of collaborating to involve patients with researchers in the podcast,
- PPI in Osteoarthritis Research features RCSI School of Physiotherapy staff, Prof Helen French and Dr Joice Cunningham in conversation with two members of the ENACt PPI panel, Maria Bolton and Eric Boyle. ENACt is a HRB-funded study focused on the management of osteoarthritis in primary care In Ireland
These podcasts are facilitated by Lorna Kerin, RCSI PPI Ignite Network programme manager.
Ulysses Neuro podcast is about giving voice to members of the public, families and patients facing difficulties with mental health and rare disorders. The team at Ulysses Neuroscience Ltd. will explain the underlying biology and current research, for each specific topic discussed. This podcast aims to advocate, empower and give a voice to the community across several languages bringing awareness to a wide variety of issues.
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